New Alzheimer's Drug

They have come out with another new drug to slow down, buy some time, not cure, Alzheimer's in people with mild or early stages of cognitive impairment. Leqembi, developed in Japan, is an antibody that is designed to remove the sticky deposits that clog up the brain. With a cost of about $26,000 per year for the drug, hospital visits to receive the infusions, and required brain scans it seems a bit financially prohibitive for most people. In addition, in studies there were incidents of brain swelling and hemorrhage, or brain bleeds in (only 25% suffered neither of these side effects) too many people for my liking. The FDA has included a warning on the box that states that there is a risk of brain swelling. In order for physicians to prescribe it they must agree to go through a government database. 

According to the Alzheimer's Association, there are over six million Americans who are living with Alzheimer's. 

At lease they're trying. It sounds like another drug that I won't be using but I suppose they must try creating new drugs and watch people die from them in order to learn how to make them better. 

They haven't come up with a cure for the common cold, so I don't see my ridding myself of this disease in my own lifetime. Maybe we just need to accept that sometimes it's just that our time has run out and go out with grace instead of battle. It's a nasty way to have to go out though.

On a lighter note my garden is doing dismally this year with the wasps and grasshoppers devouring anything the high heat and lack of rain has left for them. But, my rosemary is doing well and, when cut,  dried and burned, fills the house with a wonderful scent.

 

Forgetful with Alzheimer's

 Left my credit card at the hardware store

Left my wallet at the bakery.

Got something in the mail that I didn't remember orderings, but when I looked I did.

Forgot to feed the cat his evening wet food. (Fortunately, he always has dry so he didn't starve.) 

Forgot to brush my teeth even though I have a watch that reminds me. 

Made a special card for someone's birthday then forgot to mail it. 

Got a form I sent to Social Security back as I had filled it out incorrectly. 

Couldn't remember the ________ (Insert here: day, week, month, year, birthday, children's birthdays, grandchild's name, etc.)

But, hey. that happens to everyone doesn't it? Well, yes I suppose once in a while, but certainly not on a daily basis. Well, guess I'd just better get used to it and try to remember to laugh at myself. 

On a lighter note:

I was so thrilled to get some luscious peaches growing. 

 

 

 

 

But, then the wasps found them and I had none 😕

 

Remember - Not easy with Alzheimer's

I posted this on Instagram but thought I'd repeat it here as I felt it really made an important point. The prompt word was REMEMBER.

Remember is a difficult word for someone with Alzheimer’s or dementia to deal with. Oh, how we wish we could remember. But, since we often can’t, we have to make new memories, new friends, and relearn things that we can’t remember how to do. A child does not get angry when he or she doesn’t know something. They just set out to learn. So, I will learn and learn as many times as I can without anger (well, maybe just a tiny flare up now and then). And, if I am successful then, hopefully, I will.

 

I have a group of ladies that meet at my home once a month to work on our different crafts and just chat for a couple of hours. I pulled out some embroidery to work on. Now, I have been embroidering for most of my life and I suddenly couldn't remember how to do a lazy daisy stitch. Fortunately, a couple of the ladies knew embroidery and one of them showed me how. I felt so stupid and found myself tearing up.... that's normal for someone with dementia, to cry. But, I didn't cry and proceeded to make some very nice lazy daisy stitches. If I set it down for a couple of days though, then I have to relearn it. 

 

My niece, who is trying to understand what I'm going through.... probable the only person who is..... said she read that people with Alzheimer's get angry all the time. Yes, I understand why they would. It's so frustrating at times. I do get angry but not around others. I don't feel they should suffer because of my upset when I can't do something or understand something.  Around others I cry. 

 

"Tell me and I forget. Teach me and I remember. Involve me and I learn.” - Benjamin Franklin

https://www.instagram.com/jeanchaneyaz/

 

Watch Your Words

Watching a movie that had a character from another movie. Hubby pointed it out and I said, "I don't remember." And, his reply was a very sarcastic, "Of course you don't." Well slap my face and push me down a bit further why don't you? He immediately realized that he shouldn't verbalize his frustration over my Alzheimer's and reached over to grab my hand. Yes, he will forget by today that he even spoke such an insensitive remark. But, the one with dementia, who can't remember much of anything these days, will never forget. 

Watch your words and reassess you thought process people. 

I have learned though to live with inflicted pain and most always show a smiling face to the world. 

Cheers!

I Used To Know How to Do That.

One of those days. I got all jazzed up about doing a knit scarf. It's supposed to be easy. First, I pulled out my interchangeable needles only to find that I had forgotten completely how to put them together. No problem. Off to YouTube. Several videos later I still had no idea. So, I picked out a pair of regular circular needles. Then, I took a skein of yarn and proceeded to use my yarn winder to make a working cake. HA! That was a disaster. But, after a tune I was able to figure out how to get it right and I had my ball of yarn. I just can't remember, after a million times, how to cast on though, None of those videos are making any sense either. I decided to just do the simple cast on (which isn't very good) go from there.  Now, it was time to begin. Well, I have been "beginning" all day. Nope. Not happening.

Do I give up? Should I push myself into near hysteria? Neither seems to be a good option. So I will just try again tomorrow. Some days are just like that.😟

Even trying to type this has been amusing. I am skipping letters, mixing up the order and forgetting where I was going with my thought. Please forgive me if this is jumbled.

On a brighter note, we discovered that our dog is actually a black Belgian Malinois. She has such goofy ears and even though she is very smart, she has a few quirks. Reading about the dog traits however has show that it is just part of her nature so it will be easier to understand. She doesn't care if I can't remember how to do things. As long as I remember when it's dinner time, and I don't think she's likely to forget to tell me! So grateful for her.

Crystals and Forgotten Crafts

Crystals. Crystals are my newest obsession. I seem to have a new obsession every few days. I find focusing on one thing becoming more and more difficult. I get so enthused about something, get everything out, order new things, read and buy books, magazines, and courses about the given new love only to find something else to replace it all too quickly. A friend suggested that I might have ADD but I'm not sure you develop that in your 70's? I'm thinking that it is the Alzheimer's. Maybe I'm stressing about not learning everything that I can before my brain is total mush and that's why I just can't seem to squeeze in enough learning of new things each day? It's both frustrating and exhilarating at the same time. 

My guitar has new strings, is tuned, while the books with pieces to play sit untouched.

My fiber on my spinning wheel and drop spindles are covered with dust.

Looms of all sizes and shapes, filled with projects that have been started and abandoned sit mournfully propped on shelves. 

Bags upon bags of half finished socks, sweaters, scarves of knitted, crochet, Tunisian crochet, and embroidery know they will never be completed as I can't find my place any longer in the directions or don't know how to do the stitches anymore. 

I love all these crafty things but each time I pick something up now I have to watch videos to see how to do things that used to be second nature to me. Simple things are now difficult. It's like being a beginner every day. 

So, this week it's crystals. Beautiful colored objects that have names to memorize, qualities to memorize, and different ways of incorporating them into my life to discover. I feel sad to know all of that will have been mostly forgotten in a short time though while I seek to relearn something else I used to know.

Alzheimer's Nightmares

Nightmares. I suppose we all have them. But, I have read that those of us with dying brains have them more. I think I can agree to that. I have the crystals that are supposed to protect me from them next to my bed. I dutifully sage my sleeping area. I think positive thoughts before slumber, yet there they are haunting me yet again. I know all about keeping a Book of Shadows. I understand journaling. I know all about talking things out, yet, they persist. 

Maybe I need to make friends with these demons. Maybe I need to learn to laugh at their shenanigans. Sometimes, tired as I am, I don't want to fall asleep. 

When I was younger I would dream constantly of going back to college but I was always lost and missed the class. It was a constant dream. One day, an old friend appeared in the dream. She said, "I know you're scared to do this so I will walk you to the class to get you started." When I awoke I called a current friend and asked her if she would consider going back to college with me herself. I was delighted that she would. We went and enrolled at the same time. I never saw again her at school, as we took different things, but that's all I needed to get me going and I would up with a Master's Degree in Higher and Adult Education.

I suppose I'm just going to have to wait it out until someone pops into my dreams to help me find a way out of this recurring nightmare.

On a lighter note. Spring is here. The garden is blooming. Lambs have gone to market. Kittens are being born to out barn cats. I got to take a delightful trip to see my family and meet my newest grandson. Life is good.