Diagnosed with Dementia and Alzheimer's, this blog is to help keep my mind active. I'll share my thoughts, current projects and interests. Negativity is not wanted, so all comments will be monitored.

Showing posts with label Michael J Fox. Show all posts
Showing posts with label Michael J Fox. Show all posts

Friday, May 3, 2024

Post is NOT for everyone sensitive to death relatred to Alzheimer's


Who knew there were so many kinds/causes for dementia? I have the run of the mill Alzheimer's for which I am grateful. 

PLEASE DO NOT READ FURTHER IF THE CONVERSATION OF SUICIDE OR EUTHANASIA IS SOMETHING YOU WOULD FIND DISTURBING    

Robin Williams was one of my favorite comedians. His works made you laugh and yet cry at the same time. His life was like that as well. When he discovered that he had one of the severest forms (Lewy Body, a more aggressive cognitive decline with a more impaired life that can include hallucinations,  paranoia, confusion, and a shorter survival time) of dementia, he ended his life. Good for you, Robin. He knew he didn’t want to live that way or for his family to remember him that way.

Not to think I am thinking of following in his footsteps, no, fortunately I do not have this awful form of dementia.  Having Alzheimer’s though has made me much more aware of the eventualities that can befall some of us. For some, ending life while still able to control one's functions, to know one's family, to be more than a vegetable should be a given choice. I get very angry when we know it is time to put down our pet when he/she is in pain, but for some reason won't allow humans the same dignity. 

I'm happy to see that some state, Oregon, Washington, and Montana have begun to allow active euthanasia, a choice to be given a lethal drug to allow death. All states allow passive euthanasia (death from the patient refusing food, water, treatment) yet this can be lengthy and painful.

Not sure what took me here today. I was writing a post for my Instagram about laughter and came across a quote from Erma Bombeck. “There is a thin line that separates laughter and pain, comedy and tragedy, humor and hurt.” So, my thoughts went to Robin. 

Hope this hasn't upset anyone. Just my rambling thoughts. 

On a lighter side:  

Here is Loki. We found him abandoned when he just over a week old, we think. We've had him for almost a month and now he weighs over a pound and is thriving. 

 

Sunday, September 3, 2023

Role Models for those with Alzheimer's or Dementia

 I have some "heroes" or maybe just role models helping with my journey down the dark path of Alzheimer's. One being Michael J. Fox and the other being Patrick Swayze. 

Michael J Fox, comedic actor best know for his roles as known for his roles as Alex P. Keaton on TV's Family Ties, and as Marty McFly in the movie Back to the Future, was only 29 when he was diagnosed with Parkinson's disease. He has battled with its effects for over 30 years. In an interview with Smithsonian Magazine he said that he’s been able to remain optimistic because of his love for his family and the fulfillment he finds in helping others who are struggling.

Patrick Swayze, an actor, dancer, and singer who was named “The sexiest Man Alive” in 1991 by People Magazine, died at only 57 after a two-year battle with pancreatic cancer. His wife, Niemi Swayze, repeated in an interview what he had said to her:  playing even a small part in helping change the lives of those who are fighting the disease -- or their loved ones -- for the better is a "great honor."  He is another hero of mine as he never gave up. I can only hope that publicly voicing my journey dealing with Alzheimer’s/ dementia, is helpful to anyone who is dealing with any long-term issue to see that we have to rejoice in what time we have, not what time we might not have. What we can do, not what we can’t.

“How do you nurture a positive attitude when all the statistics say you're a dead man? You go to work.” - Patrick Swayze

That's right. Keep going. Keep putting one foot in front of the other. Let's look at what we can do instead of what we can't. Let's enjoy the time we have instead of fretting over the time we may not have.

A Mala bracelet that I made to repeat the mantra shown. I do still have intelligence. Maybe not as much or sharp as it once was, but I still have it and have to remember that as long as I'm still learning new things that I am on the right path.


Alzheimer's currently has no cure and no survivors. But this will change.” – Alzheimer’s Association - @alzassociation

Alzheimer's Blog for Jean Chaney is Moving Site Location

 I found that someone was actually reading this blog and left a message as they were worried about me. I found that quite touching. Recently...