Diagnosed with Dementia and Alzheimer's, this blog is to help keep my mind active. I'll share my thoughts, current projects and interests. Negativity is not wanted, so all comments will be monitored.

Saturday, July 6, 2024

Kisunla and an Alzheimer's Choice

 My thoughts on the new wonder drug for Alzheimer's, Kisunla.

How low can these drug companies go trying to get people's hopes up? This one is a doozy. First, to take it will cost you almost $49,000 for an 18 month supply. Second, the side effects include brain swelling and brain bleeding. Nice. Third, patients only declined about 22% more slowly in their memory than those who received a fake infusion.  And lastly, it is only good for about 7 months of use. 

Keep in mind, these are statistics that I found online, and there are many conflicting numbers and thoughts, so do your own research.  This is just  my opinion  and my thoughts regarding the pharmaceutical companies. I certainly appreciate the research, but let's do more before we release something that just gets people's hopes up. Nothing can reverse the memory loss. Nothing can put Alzheimer's into remission. Let's keep working on it. 

Why do I feel the need to do research before popping a pill or getting an infusion or injection: Well:

Years ago when I reached menopause, my doctor insisted that I HAD to go on estrogen replacements. I refused because I didn't like what I was reading in my research. She was so upset with me. By the next year, however, oops, they found out that way too many women developed uterine cancer due to the added estrogen. She never bothered me again.

Also, after developing kidney stones in my 20's, I was told to stay off of any calcium. That was the thinking of the times. Now, of course I have osteoporosis from a lack of calcium all those years. It took the medical community many years to go "oops" again to a mistake that damaged many of us who blindly follow medical advice. 

Currently, my doctors have all insisted that I take medications for the osteoporosis. My research finds it to be a terrible thing to do. It hardens the bones, yes, but then makes them brittle with even more  catastrophic results. So, I refused. Fortunately, I have a new young doctor who applauded me and said, "I don't blame you for that." 

So, I know better than to bel9eve what drug companies come up with for their financial gain. Grasping at straws is not for me. I do take two medications that have been proven to be safe for those with dementia, but not proven effective for everyone. Since they're safe. I take them. Who knows if they've made a difference of not. I'm doing pretty good though so I'm not complaining.

On a lighter note:

It's hot out there in the Texas afternoon. My chickens are being treated to some iced veggies.


 

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